Registries

Enhance Transparency and Accessibility with Clinical Trial Registries

A Disease Registry is a valuable tool that collects and organizes detailed information about individuals affected by a specific health condition, providing an opportunity to better manage chronic diseases in a larger population. These registries serve various purposes, including research, monitoring, and improving patient care. ResearchLink can collect and post data to a registry or build a custom registry to meet your needs.

ResearchLink can import data from multiple sources, transform the data into a common format, and load the data into the registry. We have the expertise to support interfacing with different providers’ health IT systems using the FHIR API to provide data interoperability. We also provide a patient application (MyLinks) to allow patients to directly respond to questionnaires, send adverse events, and patient reported outcomes to the registry. Using our platform allows you to connect with patients over a long period of time and provides an easy way for patients to share their longitudinal records for you to better identify trends and intervene promptly.

We can feed real-time data into the registry, ensuring the information is up-to-date to enhance decision-making, allowing you to study disease patterns, treatment effectiveness, and patient trajectories.

Disease Registries play a vital role in advancing medical knowledge, improving patient outcomes, and informing public health efforts. They empower researchers, clinicians, and policymakers to make informed decisions based on real-world data.

Here are some of the data elements that we can send to a registry:

  • Allergies and Intolerances
  • Care Team Members
  • Clinical Notes
  • Clinical Tests
  • Diagnostic Imaging
  • Encounter Information
  • Facility Information
  • Goals and Preferences
  • Health Insurance Information
  • Health Status Assessments
  • Immunizations
  • Labs
  • Medical Devices
  • Medications
  • Patient Demographics/Information
  • Patient Summary and Plan
  • Problems
  • Procedures
  • Provenance
  • Vital Signs
  • Patient Reported Outcomes (PROs)
  • Adverse Events (AE)
  • Custom questionnaire responses